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the (FMS) Fibromyalgia

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• Current Events and Call to Action Items (CTA):
  • Fox on Health is asking for story ideas. Fox News airs a weekly two hour weekend health broadcast. This is a good opportunity to educate at the national level.
    Please email healthweekend@foxnews.com and request they cover a story on Fibromyalgia (FMS).
  • For those of you who have asked...May 12th was chosen Fibromyalgia Awareness Day in honor of Florence Nightengale's birthday. She is most readily known as a nurse during the Crimean War. Historical descriptions of her reveal that she battled more than half of her life with symptoms similar to FMS, CFS, MCS, and GWS.
  • Good Morning America and ABC News Article
  • Call to Action: Tell Your Story to Oprah!
  • Call to Action "Access to Medical Treatment Act (S.578/H.R. 746)"
  • Call to Action: Sample letter for UK ME /CFIDS awareness and funding
• E-mail a Letter to the House of Representative Now!:
• Site to locate Government Resources:
  • Access your Representitive here
  • Access your Senators here
• Sample Letter:
  • Example of a letter...please feel free to use or modify it as you see fit!
• More Information about Fibromyalgia:
  • Political Statement
  • News group
• More data on FMS /MPS:
  • Copenhagen Declaration
  • Patient FAQ from News Group
  • Pain FAQ (#3-#4) from News Group
• Some Fibromyalgia Web Sites to Explore:
  • It's Not All In Your Head! Article released May 20th from University of Florida
  • A site dedicated to Getting the Best Care from Your Doctors, created by MDs and Health Specialists. They also authored an excellent book for getting through the "medical maze".
  • Jennifer's FMS site, with FM-user-friendly Large Print, with great links and some interesting art!
  • Fibromyalgia Network Newsletter is on line!
  • Vicki McKie's Fibromyalgia and Medical Links!
  • September Biking NFAC FMS Awareness Event a Success!
  • FibroWorld is a wonderful site! Be informed, aware and involved!
  • Co-Cure Site..a great resource for the "alphabet soup" of Invisible Chronic Illnesses.
  • Colorado Health Network
  • FMS Association of B.C. Library
  • Help site for accessing the Fibrom-l Newsgroup
  • Bibliography of Fibromyalgia Research
  • Oregon Fibromyalgia Foundation
  • Dr. Devin Starlaynl's Site! ..And, she has written a superb book that I refer to frequently!
  • Miryam wrote a book on FMS, she has more information on line here
  • Moira's Extremely Informative and user friendly site for CFIDS and FMS information
  • National Fibromyalgia Awareness Campaign
  • Dr. Nye's FMS page
  • Empowerment Zone site for "disabled" individuals
  • MARRTC Fibromyalgia page
  • Family Village; Disability Related Resources
  • Bob's Action Oriented Site to get you involved
• Miscellaneous:
  • Fibromyalgia Doctor's Assessment Form (to help assess your functional impairment and condition -- often used for SSDI information)
  • NIH Funding Report; Note section on Arthritis, Musculoskeletal and Skin Diseases
  • New and Exciting Documentary and site that [Lupus Documentary aired October 8th '97]!
  • "Do no harm"--a gentle reminder
  • A new webzine geared for "managed care" physicians...but I think it's great for laypeople as well!
  • Some FMS Associations and Newsletters
  • Acronyms you might run across via FMS literature or the FMS newsgroup
  • Site with a huge list of links for disability resources, government facts, and more!
  • FMily photos: Interesting concept! Snaps of PWFM...(note: many feel compelled to show pre-FMS pics)
  • Visit My Personal URL

Disclaimer:

Please Note that all information and links provided are NOT meant as medical advice. These are informational only! Please check with your personal Medical Professional before trying any new regime and /or to verify it's validity and usefulness for yourself. I am not a medical professional; I am just another person with Fibromyalgia (and other asst. alphabet illnesses).

Feedback:

I do try to respond to all my email. If you find a bug, have a comment or suggestion, or just want to tell me about your visit here, I'd like to hear from you.

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